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  #106   Report Bad Post  
Old 04-03-2012, 11:19 AM
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libby2 libby2 is offline
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Re: Differently Abled Artists II

I took me a while to decide to come out, so to speak, because I've discovered that people can be mean, but since so many others have I thought I might. I also have fibro, was diagnosed in 1980, took a while to adjust to, but have. I have chronic, daily migraines which are controlled with meds unless I'm under a lot of stress. I also have something called pseudotumor cerebri, loosely described as the body thinking it has a brain tumor but doesn't, and acts like it's in the early stages of brain cancer. Fortunately I've only had one bad episode about 20 years ago, but it knocked out my fine eye-hand coordination, wrecked havoc w/my reading, some memory problems, and left a large visable scotoma (blind spot) in each eye. I've trained myself not to be aware of them when both eyes are open, so they no longer bother me. It took 10 - 11 years of doing online jigsaw puzzles for hours a day to get my eye-hand coordination back. It's still not the way it use to be, but I can look at something, look down and draw it , then look back up and find the same spot now. I figure the more practice I get will improve the neuro connections. I'm wondering if anyone else has this, it's not that common, but maybe someone does?
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Old 05-08-2012, 05:22 AM
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Re: Differently Abled Artists II

Hello Everyone: I am the originator of the thread for all of us and I am happy to see it is still up and running and people are getting something out of it. I have been off line for awhile because of a virus on my laptop that was repaired by a friend this past weekend. So of course I had to come back here.

I also have fibro; diagnosed in while recovering from spinal cord stimulator surgery; I wasn't getting better I had developed so weird painful things in my body that confused me but not my pain mangement doctor. And yes exercise can cause harm to some patients. The only thing that has worked for me is walking (not overdoing it) and gentle stretches (like yoga). And a healthy diet in combination helps a lot too. I tried all the so called "epilepsy meds" and suffered some severe side affects so I stopped it.

Another thing that helped me was to get with a board certified pain management specialist. I go to a pain clinic that is a part of Emory University Hospital system in the Atlanta area and they are awesome. Before that I went Southeasten Pain Mgmt part of the Carolinas Medical Center in Charlotte,NC and they were wonderful as well. I have found that working with a pain clinic that is associated with a medical school/hospital assures me that they are indeed board certified and 100 percent legit instead of a "pill mill". My treatment plan is narcotic pain meds, counseling, diet and exercise program. I have been in pain mgmt since May of 2003 and I do not know how I made it this far.

This thread is Part 2 if you want to see more of my medical history I believe Part 1 is archived and can still be read. It is a long and complicated history that all began with a selfish inconsiderate woman who was talking on the cell phone while driving and plowed into my car. It has been almost 14 years now.

If someone had told me back then that I would be able to live and actually manage my health I would have told them they were nuts. But I do. I can no longer workd and went out on Social Security Disability in 2005. I had to learn to concentrate on doing the things I can still do and learning some other things that replaced what I had lost. Art has been a life saver as well as escaping through reading and helping others. I am seriously considering taking guitar lessons, something I have always wanted to do.

I have a family (3 adult kids and 4 grandkids) but I get little emotional support from them. Same ole story; disbelief and lack of compassion coming from folks we thought loved us unconditionally. Well that is hard to find and keep over the long haul. In the past 14 years, I have learned to weed out people who are not supportive and can be toxic to me, tolerate my family but count on them for nothing and acquire new friends who really are unconditional and most of the time disabled by disease and injuries like myself.

I hope to be able to be here more often now. And I welcome you all to this thread and hope you are able to get something out of it. Take gentle care of yourselves and just do and be the best you can,

Nancy Ann
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Old 05-30-2012, 03:11 AM
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Re: Differently Abled Artists II

Hoping to bump this up so folks are aware it is here.
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Old 07-17-2012, 06:22 AM
windsong1944 windsong1944 is offline
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Re: Differently Abled Artists II

It's been a very long time since I was here...due to what else ....health reasons. The last two years have been very bad I was diagnosed by one doc who ran an MS clinic with what else MS! I took some very serious drugs, was extremely over medicated, had a car wreck, lost my license, and then was told that this doc had a lot of questionable dianosis. I dropped him and on the advice of my pcp, saw an endochronologist. My body is wrecked and the endo. thinks that I have a genetic disease where there is too much copper in the blood.I had to have a liver biopsy and will find out in two days what the results are. I hope that this thread will continue on because there is a big need for it. Only we who have been there can get and give the support that we need.
I have kept on with my art. It is my one true joy. I hope that this finds you as happy as you can be with what you face each day.
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Old 07-17-2012, 02:03 PM
artyczar
 
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Re: Differently Abled Artists II

Hey Windsong,

Sorry to hear of your health issues. I actually have MS myself and I know that getting a diagnosis for it is not cut and dry, as nowadays there is really specific criteria one must have to get an actual, full diagnosis. It's not like it was before the 1980s where they'd put you in a hot bath and if you came out feeling like a noodle, Viola! "You have MS." Now there are MRI machines, and even having multiple scaring on your brain and/or spine is not enough for a diagnosis. You must also have it showing in your spinal fluid to get a confirmation on the diagnosis. They can not just give you a clinical diagnosis of MS anymore and just put you on interferon.

I am not on interferon anymore. I could not take it, but I'm on a lot of other meds and I am managing it all right. Although, yesterday the ophthalmologist told me that my optic nerves were worsening. Great! I have not had much visual involvement with MS like many people do, but I guess that's not the case anymore.

Other than the pain and the "zappy" feelings in my legs, I just hate, I mean HATE the fatigue that goes along with this illness. Plus, believe it or not, I also have Lupus as an overlap Dx. So I never know which illness is making me so tired!

Sorry to complain. Oops!

I haven't been back on this thread in a long, long time, but I thought I'd check in.

I hope everyone is doing okay.
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Old 07-17-2012, 10:14 PM
windsong1944 windsong1944 is offline
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Re: Differently Abled Artists II

: Oh I's so sorry to hear of your problems, Artczar.But you just complain as much as you want to, you have earned that right the hard way. I can sympathize with your overwhelming fatigue. I am like that also. I get up in the morning feeling great and I make a long todo list. If I manage to get a couple of them done, I feel good about the day. Otherwise I just crawl back to bed and try to sleep. What a way to live! :wink2
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"Simplify-Look around-observe nature. See in nature the source of art,of craft, of truth, of the beautiful."
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Old 07-18-2012, 12:05 AM
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I had joint pain, gastro problems and had extreme dizzy spells for 25 years. I was diagnosed with lupus, then arthritis, then psycosis. One doctor kindly told me to look into the two most common food allergies, wheat and milk. I tried elimination diets and saw no improvement. A few painful years later I got my first pc and was found out about gluten intolerance back before it was widely recognized by doctors. I tried a gluten free diet and had massive improvement in three days. I have been on a gluten free diet for about 15 years now. All the symptoms have subsided. I finally got an "official" diagnosis of celiac disease from a doctor who believed me last year. I now also have to avoid soy. I am inclined to think that the genetic modifications to wheat and soy have caused this pervasive problem in so much of the population. I didn't have problems until I was an adult. Anyway, a gluten and pain free life is the way for me. It's become a way of life that is becoming easier every day since they now actually identify gluten on products and make GF food that actually tastes good (a huge problem 15 years ago). I am gluten free and love it! I have been accused of "pimping" the GF diet to everyone who is suffering from pain, migraines, arthritis, on and on. This is true. If a simple diet change can improve your life, what do you have to lose? Celiac disease is an autoimmune disease and can cause a multitude of symptoms. Try it for a week, it could be the key to a pain free future. Sandi

Last edited by GardenMaven : 07-18-2012 at 12:17 AM.
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Old 07-20-2012, 10:28 PM
windsong1944 windsong1944 is offline
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Re: Differently Abled Artists II

Thank you for your suggestion Sandi. My daughter swears by gluten free and has all three of her children on it. They have many allergies. She keeps prodding me to try it and I mean to but keep thinking that I start "tomorrow"! So thanks for the push. It certainly can't hurt to try.
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Old 07-20-2012, 11:14 PM
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Re: Differently Abled Artists II

Yes! Another possible convert! If you google gluten intolerance I think you will be surprised how many problems it can cause. Good luck with your diet try. Some foods actually taste better than "real" food (I can remember how most things tasted). Let me know how it goes. You go, girl! The GF food is expensive,though, so I just buy it occassionally for treats, except for my favorite Ancient Harvest pasta. Sandi
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Old 07-21-2012, 12:39 AM
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Re: Differently Abled Artists II

Hello everyone,

I am a new artist here on WC, and this will be my first post (outside of the newbie post). Anyways let me get this thing going and see if I'm any good at it.

Well I'm 22 currently and have been "artistic", "skilled", whatever you want to call it from a very young age. I didn't really care to much for art because it drew attention to me and I'm very shy. However it has come back into my life very strongly around my late teens.
Being chronically shy and never really growing out of it I developed Social Anxiety Disorder. I'm afraid of people, not all people, more specifically being embarrassed and humiliating myself. I was badly bullied in middle school and it collided with the natural shyness. I also have bipolar 2, a more milder bipolar sub type, but this is very well managed. Only flare ups are due to extremes or being intoxicated.
But the social anxiety has plagued me for years. It began to be a problem in highschool when I was around 15 or 16. Panic attacks, avoiding school, etc. I've always liked to work and when I hit 18 my therapist prescribed me klonopin. very strong, dangerous, and addictive. It allowed me to work in my public serving job but it made the anxiety worse (rebound) and was addictive. I never took more than I was supposed to, I just built a tolerance and it no longer had an effect.
Around march of 2011 I realized I was just in a circle so I weaned myself off and have been free of it since October 2011. The rebound anxiety is horrible and my body/nerves are still getting used to it. I haven't worked in a year and four months but I'm recovering and halfway through a disability case. Thanks for listening and good luck to everyone else
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Old 07-21-2012, 12:42 AM
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Re: Differently Abled Artists II

To katsarecool,

nice going with the yoga. i love doing it. it really is a miracle for just about everything. not just physical, it helps with mind and focus which contributes to art. yoga has been one of the only things that have helped me as well.
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Old 08-15-2012, 11:12 PM
windsong1944 windsong1944 is offline
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Re: Differently Abled Artists II

After so many years,doctors and expensive tests, I found out that I have diabetes. Something that ca be diagnosed with a simple blood test. why all this pain of not knowing.
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"Simplify-Look around-observe nature. See in nature the source of art,of craft, of truth, of the beautiful."
Henry David Thoreau
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Old 08-15-2012, 11:46 PM
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Re: Differently Abled Artists II

For crying out loud! Sometimes doctors can't see the forest for the trees. Once I had a kidney infection, was sent to a surgeon who sternly told me there was nothing wrong with me. After a couple of months of sleeping in a chair, I asked a nurse if I could have a urine test and sure enough, kidney infection. The was told sternly that I shouldn't have let it go so long. At least now you have an answer and either diet or meds will get you fixed up! My best wishes for you! Sandi
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Old 08-16-2012, 02:03 AM
artyczar
 
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Re: Differently Abled Artists II

I was recently diagnosed with Lupus Vasculitis (on top of everything else). I had been breaking out in these very strange rashes that itched like mad, but then became very very painful, at times unbearable to the point where I couldn't even walk if it was on my feet (hands and feet is where it began now it's all over).

Remember when I said that the neuro-ophthalmologist thought there was something up with my optic nerve in relation to my MS? Well further tests showed Lupus Vasculitis. I was then put on Imuran last week (an immune-suppressant like chemo/interferon) and I've been feeling the nausea already.

Not only that, but my depression (perhaps because of all of the stress) kicked into high gear and I've been really struggling ever since. It's not good right now.

Thanks for listening.
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Old 08-16-2012, 02:53 AM
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Re: Differently Abled Artists II

I'm scheduled for my first set of repeat MRI's with my MS doc, who at this time had diagnosed me with transverse myelitis. If it is TM, it is atypical, as I did not have a sudden onset and don't know exactly when it started. It is possible it began while I was experiencing severe ulcerative colitis to the degree i had my colon removed. Then I earned the diagnosis of Crohn's during reconstruction surgery. Two neurologists diagnosed peripheral neuropathy -- wrong! -- and then I sought out the MS clinic. With my auto-immune double whammy I have all sorts of fun . . . not! It has been a couple years since I really created much of anything, but right now am trying to get back into painting mountaintops again! I can't climb them anymore .... so I have to memorialize the times when I could!
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