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Ali the Cat
01-28-2004, 07:10 PM
Hi,

Not sure if I'm posting this in the right place but I was wondering if anyone else on wetcanvas suffers with post viral syndrome (M.E) I have it and it's so frustrating, some days are worse then others. I want to paint but sometimes can only manage to paint a bit and then I'm totally exhausted, all I seem to be doing lately is sleep!! I keep getting really down and depressed. :(

sorry to moan

Ali

Cathy Morgan
01-28-2004, 09:07 PM
Don't have it myself, but I sympathize with your frustration. Do your best to think happy thoughts and be glad for every bit of painting you do. Your five minutes might be better than someone else's six hours - time painting just isn't quantifiable the way some things are. So concentrate on feeling happy and grateful for the energy you do have - and enjoy lots of naps.

A book/CD set that might help is called Effortless Mastery. It's written by a musician for musicians, but has lots of application to any art form. Imagine that your painting becomes totally effortless - requiring little or no energy. Wouldn't that help?

Best wishes - and congratulations on doing the painting you're doing! :clap:

Yokovich
01-28-2004, 11:51 PM
ali--for many years I was chronically fatigued. I have never understood why. I was diagnosed with chronic fatigue syndrome--I felt like I had the flu "all the time". I think this is the same condition that the uk calls ME--right? I was told I was "depressed" (and in looking back.. yep! probably was)...but I also had lab work that substantiated that things out of whack. there was no treatment for it except supplements and eating right. Do you have a good support system of friends and family? My best advise is to treat yourself as best you can in all areas. Your body knows best what it needs. (on some days that should include art--even if it is looking at someone else's art--or reading or perusing the forums). Some day you feel well again. I do. it took a long time--but I feel well again and you will too.

Ali the Cat
01-31-2004, 08:07 PM
Thanks for the encouragement guys may try and get that book it sounds interesting Cathy.

Celestia yes It is the same as chronic fatigue. I am on a diet at the moment which has eliminated some other problems I was having as well as the M.E. so thats positive. I haven't got a lot of support for this... I'm not very good at reaching out. My family is about five hours away, they keep trying to persuade me to go live back near them but it wouldn't be an ideal situation and I wouldn't want to get too dependant on them.

I'm on the waiting list to see someone at the hospital then hopefully should start getting some proper support/help as most G.P.s don't really understand it. I don't know if that was your experience as well? the only thing is the waiting list is about a year long!!

Ali

diamondbird
02-02-2004, 06:31 PM
Hi,

Not sure if I'm posting this in the right place but I was wondering if anyone else on wetcanvas suffers with post viral syndrome (M.E) I have it and it's so frustrating, some days are worse then others. I want to paint but sometimes can only manage to paint a bit and then I'm totally exhausted, all I seem to be doing lately is sleep!! I keep getting really down and depressed. :(

sorry to moan

Ali

Hi Ali!
Yes....Here at least another sufferer from ME....and I have had it for many years....It really gets you down at times, doesnt't it....So, I'm glad to hear from some-one with the same problem....
When I get bad...I suffer from long bouts of insomnia....as bad as sleeping a lot?...
How long have you had it?...... I think that everything is given to us for a reason...and I struggle to find it....Perhaps life is asking us to pay more attention ot our dreams, our soul, and our inner life....How do you feel about this?
Sometimetime it is important to hope in the middle of despair....And all of that looking at other people's painting work sounds like a great creative curve...
Very vivid dreams can be associated with ME too, do you get any of those?
My husband is a medical research scientist who tries to keep up with ME research...the latest theory (coming from a Doctor in South Africa) is that it is a long term infection caused by a bacteria (or parasitical infection) called Ricksettia. This can only be cured by giving the patient large and long doses of a strong antiboitic...
But the trick is to find a good doctor willing to do this....And that's hard...
...Anyway, don't worry about moaning...Sometimes it helps to talk!


:angel: :angel: :angel:

Ali the Cat
02-06-2004, 01:07 PM
Hi Ali!
Yes....Here at least another sufferer from ME....and I have had it for many years....It really gets you down at times, doesnt't it....So, I'm glad to hear from some-one with the same problem....
When I get bad...I suffer from long bouts of insomnia....as bad as sleeping a lot?...
How long have you had it?...... I think that everything is given to us for a reason...and I struggle to find it....Perhaps life is asking us to pay more attention ot our dreams, our soul, and our inner life....How do you feel about this?
Sometimetime it is important to hope in the middle of despair....And all of that looking at other people's painting work sounds like a great creative curve...
Very vivid dreams can be associated with ME too, do you get any of those?
My husband is a medical research scientist who tries to keep up with ME research...the latest theory (coming from a Doctor in South Africa) is that it is a long term infection caused by a bacteria (or parasitical infection) called Ricksettia. This can only be cured by giving the patient large and long doses of a strong antiboitic...
But the trick is to find a good doctor willing to do this....And that's hard...
...Anyway, don't worry about moaning...Sometimes it helps to talk!


:angel: :angel: :angel:


Hi Diamondbird,

well at least I'm not the only one with it on wet canvas, :) although I wouldn't wish it on anyone ;)

I've had it worse for the past two years but have it for a number of years before that.

I also get bouts of insomnia and extremely vivid dreams. I'm not sure of the whys of illness but I do know it's teaching me to live within limits, and set boundaries for myself. Whereas before I wasn't a very boundaried person. Also I think it does bring you to a place of calm (thats if you can get past the being frustrated, which I find difficult at times) as in you haven't got the energy sometimes to do lots of stuff, so you just have to rest and meditate on good things, like you say it's nice to view other peoples art.

It's very interesting to hear that it is caused by Ricksettia, do you know whereabouts the bacteria originated from? heh I am taking a long dose of antibiotic at the moment 'cos i'm also on an anti-candida diet for candida of the digestive tract...which by the way a lot of people with M.E have, I've also got food allergies, do you have this as well? hmmmm I wonder if the anti-biotics might start curing the M.E as well! :D

diamondbird
02-08-2004, 06:22 PM
Hi Diamondbird,

well at least I'm not the only one with it on wet canvas, :) although I wouldn't wish it on anyone ;)

I've had it worse for the past two years but have it for a number of years before that.

I also get bouts of insomnia and extremely vivid dreams. I'm not sure of the whys of illness but I do know it's teaching me to live within limits, and set boundaries for myself. Whereas before I wasn't a very boundaried person. Also I think it does bring you to a place of calm (thats if you can get past the being frustrated, which I find difficult at times) as in you haven't got the energy sometimes to do lots of stuff, so you just have to rest and meditate on good things, like you say it's nice to view other peoples art.

It's very interesting to hear that it is caused by Ricksettia, do you know whereabouts the bacteria originated from? heh I am taking a long dose of antibiotic at the moment 'cos i'm also on an anti-candida diet for candida of the digestive tract...which by the way a lot of people with M.E have, I've also got food allergies, do you have this as well? hmmmm I wonder if the anti-biotics might start curing the M.E as well! :D

Hi Ali...
Sorry to hear about the insomnia, and vivid dreams, I got them too...sometimes it feels like you are falling into a vivid pit, well at least it was for me...I find that a strong dose of Valerian can help here..Lots of other Me people take it for this..
No, unfortuntely the anti-biotics won't help here...they have to be exactly the right sort of Tetracyclines (think that how you spell it) tailored for your specific needs, after a sensitive test for Rickesettia...not given by many doctors at the moment...standard tests not sensitive enough) ...

Then you are given different types (tailored to your individual needs) for one week in four, for times lasting as few months, to a year or more...depending on the severity...
The hard thing is too find a doctor willing to do this...as this are STRONG ant-biotics..and will knock you around a bit in the week that you're taking them...
But from the evidence, they work in over 90 % of those taking them...and others report improvements...
Still looking for a doctor myself... But still trying
What do you think...If your interested I can get in touch with others lucky enough to have had this treatment...and the medical pages..
I'm starting a very gentle yoga now...with quiet meditation..find it very calming, and helps brings insight...
:angel: :angel: :angel:

tadpole
02-08-2004, 08:36 PM
Ali;

I can understand your frustration due to your symptoms. Several years ago I first started having vertigo and then extreme fatigue. I had many screening test
and examinations by various specialists. The first problem found was a vitamin B12 deficience which only possibly explained the tingling in my feet. Several of the specialist suspected MS. The first two neurologists that examined me found
some brain damage ( small scars ) . A year and a half had passed at this point and I was having muscle fasciculations and severe muscle spasims, extreme fatigue and the more I exerted the more I had a stagered and spastic gait. Still no diagnosis. I sought out a neuro-muscular specialist and after two days of testing she put me on Amantadine. Amantidine is given to both MS and Parkinson's suffers. The first diagnosis was Chronic Fatigue. The Amantidine was like a miracle, in a couple of days I could walk with out a cane and had an excess of energy. That lasted three months, then I could feel it all returning. She then told me to double the dose of Amantadine which helped but not like the first three months. I was also taking medication for the disabling muscle spasims. As I became worse dosages were increased and then Selegine was added ( a drug usually used for Parkinson's). At the maximum dosage of Amantadine; I started having serious side effects and am now weening off of it for an experimental drug. Still no firm diagnosis only possibly a Parkinsonian movement disorder agravated by an injury from the Viet Nam War. As I type this, I am jerking around with the muscle spasims. For the past two and a half years; I try to get as much accomplished early in the morning. In other words learning to live with it.

Please find the best neuroligist you can. Your symptoms are the same as found in several maladys. It some times takes finding the doctor that has the right experience. I say a prayer for everyone that suffers from these disorders.

diamondbird
02-10-2004, 01:24 AM
Dear Russell:
Have you ever read about the Gulf war syndrome? And also Many farmers also have similiar severe symtoms from too much exposure to strong chemicals?

tadpole
02-10-2004, 03:48 AM
Dear Russell:
Have you ever read about the Gulf war syndrome? And also Many farmers also have similiar severe symtoms from too much exposure to strong chemicals?
Diamondbird;

I have read a bit about the Gulf War syndrome but not recently. The last that I read about it was that possible causes were DEET used on the uniforms to repel insects, armor piercing ordinance made from spent uranium, and smoke from the burning oil wells. My degree is in fine arts (heavy metals exposure) but I have worked as a diver and have done everything one can do underwater. There is a connection of diving to asceptic bone nucrosis (long bones) but there is no science that connects diving to my symptoms. I have had heavy metals testing and the results were within the norm. Doctors now assume that if one was anywhere in Viet Nam during the war that the subject was exposed to Agent Orange but its effect is usually rare cancers. My search for the right doctor keeps widening. Now I am traveling from North Florida to New Orleans to an experienced neuro-muscular specialist. She has helped especially at first and is now giving me an experimental drug. It does not seem to be working very well but I will give it more time to see if there is a change. The extreme fatigue mentioned in this thread is found in a host of diseases. In total my problem certainly is not a textbook case therefore I am trying to find a University Hospital that is doing research in rare movement disorders. What ever it is; it has made a great change in my life. I can not properly manage my business so I'm trying to sell it ( listed in The Swap Shop ). It is time for me to retire to painting. When I go to the hospital, I see many people without legs. I count my blessings and thank God for the abilities that I do have.

diamondbird
02-11-2004, 06:10 PM
Good luck tadpole...and my prayers are with you...
Hope that you find a good hospital!!!
:angel: :angel: :angel:

Ali the Cat
02-12-2004, 11:05 AM
Hi Tadpole,

sorry to hear you are having problems with illness as well. It sounds awful and you have to be so determined to keep going on seeking help from medical profession....I know its not easy when you are fatigued.
There is nothing much being done for the M.E. I have, but I'm on a waiting list with the hospital, it would be good if they tested for other things in the meantime but I don't have the energy to keep going back to Doctors :(.
well I know that illness is nothing to be thankful for but maybe there is a positive coming out of a negative for you.... you can put your energies into your painting now that you are giving up your business. I also believe that the act of painting can be quite a healing tool. I pray we all get the correct diagnosis and a Doctor that can help.

Hi Diamondbird,
yes , I get a lot of horrible nightmares as well :(. I'm on antibiotics at the moment because of yeast overgrowth candida of the digestive tract so not sure if some other antibiotics may increase the yeast...but I would be interested in trying them when I have taken this course. are the medical pages etc on the internet?

whereabouts are you based, because in the UK there is a list you can get of Doctors that are sympathetic to M.E. as a lot of Drs still don't recognise it as an illness.

MvdLinden
02-12-2004, 03:17 PM
Sympaties and all...one positive suggestion...tap into those dreams!!! start by just recording them, keep a note pad by the bedside...write them down or do quick sketches....you'll generate tons of interesting ideas for development later when you are feeling more able.

cheers and best of luck

Ali the Cat
02-12-2004, 03:38 PM
Sympaties and all...one positive suggestion...tap into those dreams!!! start by just recording them, keep a note pad by the bedside...write them down or do quick sketches....you'll generate tons of interesting ideas for development later when you are feeling more able.

cheers and best of luck

oooh yes thats a good idea, thanks ;)

MsLilypond
02-26-2004, 04:05 PM
[QUOTE=Ali the Cat]Hi Tadpole,




yes , I get a lot of horrible nightmares as well :(. I'm on antibiotics at the moment because of yeast overgrowth candida of the digestive tract so not sure if some other antibiotics may increase the yeast...QUOTE]


Why do they have you on antibiotics for a yeast infection? You should be on an anti-fungal medicine! Anti-biotics make candida worse.

Here's an article I got off of immunesupport.com:

"Candida albicans is yeast normally found in small amounts in the warm interior membranes of the mouth, skin and digestive tract of healthy individuals. Typically, Candida does not cause any health problems as its growth is kept under control by the immune system and other “friendly” bacteria in the body. However, there are conditions that may disrupt the balance of bacteria and cause the overgrowth of Candida, producing an infection.
This type of infection is called Candidiasis, and can range from superficial conditions such as sores in the mouth (oral thrush), vaginal yeast infections in women and diaper rash in infants, to dangerous invasive infections of the blood stream.

Candida infections occur when the immune system is weakened by disease, stress or medication. Other factors that may prompt Candida overgrowth include high blood sugar levels, excessive alcohol intake, use of birth control pills, low stomach acidity, and a poor diet high in fat.

Extended use of antibiotics can also play a significant role in the development of a Candida infection. Patients with medical conditions that require treatment with broad-spectrum antibacterial medications can have lower bacteria levels throughout the body, as antibiotics easily destroy friendly bacteria in the intestinal tract. Friendly bacteria are known as probiotics, and benefit the body by helping to digest protein and improve bioavailability and usage of vitamins and minerals. More importantly, friendly bacteria support the immune system by activating antibodies that protect the body from bacterial infection and disease.

If the balance of intestinal flora is upset and pathogenic yeast such as Candida becomes the dominant occupant of the intestinal tract, friendly bacteria may no longer effectively produce the antibodies and nutrients the body needs to be healthy. Once growth of Candida becomes unregulated and pathogenic it will begin to release large amounts of toxins that have harmful effects on tissues and organs, which in turn produces symptoms such as excessive fatigue, bowel and digestive problems, gas and bloating, food and mold allergies, skin rashes, depression and thyroid problems.

How is Candida Treated?

According to the Mayo Clinic, a physician will typically prescribe an antifungal medication such as nystatin to lower levels of Candida. The normal course of treatment usually lasts about 10 to 14 days.

However, prolonged treatment may result in the yeast becoming resistant to the medication. At that time, a drug called Amphotericin B (Amphocin) may be used when other antifungals are no longer effective. Safety may be an issue for some as certain antifungal medications may also have harmful effects upon the liver. As a result, a physician is likely to monitor liver function through blood tests, especially if the patient has a history of liver disease.

Modifying a patient’s diet is also an important strategy in combating a Candida infection. As Candida thrives on sugar and simple carbohydrates, it is recommended that patients eliminate high sugar foods such as sodas, fruit juices, sweet desserts, high carbohydrate foods and other refined foods from their diet.

Additionally, increasing levels of probiotic bacteria will also help reduce the amount of Candida and return the balance of intestinal flora to normal. Probiotic bacteria such as Lactobacillus acidophilus naturally produce inhibitory factors that limit the overgrowth of yeast. Probiotics can be most easily obtained by consuming sugar-free yogurt or by taking oral supplements. "

Ali the Cat
02-26-2004, 05:28 PM
Hi,

thanks for the info Mslillypond. It is nystatin (anti fungal) that I'm taking for some reason my Dr said it was an antibiotic...maybe it's not...I'm a bit worried about this bit in the article (However, prolonged treatment may result in the yeast becoming resistant to the medication. ) as i've been taking it for a while now, but I have read information that some people stay on it for up to two years to be totally rid!!
My liver is ok, i've had a test for that and I also eat loads of natural yoghurt.

MsLilypond
02-26-2004, 08:48 PM
Hi,

thanks for the info Mslillypond. It is nystatin (anti fungal) that I'm taking for some reason my Dr said it was an antibiotic...maybe it's not.

you're welcome, when you said antibiotic, I thought maybe you had a bad doctor. I had a thrush infection for awhile, and my doctor had prescribed to me diflucan & nystatin (the topical kind). They are both anti-fungal. Any way I remember my doctor (this was the first thing I had seen her for) had asked if I had been on a long course of antibiotics for anything because it could cause a candidas infections and told me to not take any for any reason until the thrush was gone because it can worsen the condition. I hope you get over it soon!

bogbeast
02-26-2004, 10:40 PM
Hi, y'll!
So sorry to hear that you are going through a bad spell with the ME.' and those of you with other health concerns. I've had the U.S. version, Chronic Fatigue Syndrome, for over 10 years now, and I can really sympathize with the frustrations and difficulties of dealing with a vague or intermittent chronic illness!

Thankfully, I have had good doctors, even when all they could do was a little hand holding while I bitched (you know the refrain, I'm sure: "I'm tired! I'm tired! I'm tired!").

I've tried antibiotics (although not the very long courses), antivirals, antifungals, antihistimines, antidepressants, a vitamin regimine--all with minimal results. I have not done extensive food sensitivity testing, as some advocate, but have never found a link between anything in my diet and my health beyond the obvious: too much junk food make you feel bad. Some advocate amazingly complicated and extensive supplement, herb and cleansing routines. I tend to be skeptical, plus living on disability has meant that I could never afford them anyway!

The one glaring relationship for me between feeling good or not is stress: good, bad, physical, financial, relationship, you name it. If i'm stressed, I will get sick.. So, I did a LOT of therapy to learn to live better--as an abuse survivor I had pretty significant PTSD, and even when I'm sick I'm far better off for having worked out that stuff.

And, I try to keep my life reasonably sane and simple--keep up with my bills, do laundry before I'm out of things, whatever it takes to minimize feeling stressed in my life. I've only been able to work 2 out of the past 10 years and most of that part time, and my wonderful partner doesn't want me to even consider looking for work unless I'm a picture of health for over a year, and she'd rather I just do my artwork. I had 2 years of a bad relapse (had to use a scooter to get around!) recently, but started getting better last winter, and am doing wonderfully well now. I'm sure moving to the mild California climate from Minnesota helped, too.

Coping mechanisms for bad times: watch the birds. Look at picture books and magazines (especially art magazines, unless they make me feel worse) as I am too tired to read. Listen to music. THINK POSITIVE--it could always be something worse! Make a list of what I am grateful for. Look at the list I mead of the things I CAN do, back when I was feeling better. Bitch for a bit, then move on. If I can't paint, draw. If I can't draw, imagine drawing and painting. Eat absolutely as healthily as possible. And, try to get as much positive as you can out of whatever experience you face--if you live as well as you can today, you'll have nothing to regret tomorrow.

I wish you the best!!

Ali the Cat
03-01-2004, 08:04 AM
thanks ms lillypond me too :)

hi bogbeast, i'm so glad you are doing well now thats wonderful...it gives me hope :clap: I can relate to your post.... and the stress etc is something i am working on now as i'm sure it makes my symptons worse.

I keep thinking of moving somewhere with cleaner air maybe that would help...it's quite stressful moving though.

glad you're feeling better thats great :D

Ali

judithj
03-01-2004, 03:27 PM
I am so sorry to read about all the health problems here. Hope you all feel better soon.

Thanks for sharing the great advice.

-Judith

diamondbird
03-01-2004, 07:50 PM
Hi !
Haven't replied to this thread for a while, as I've been having second thoughts about the long anti boitic treatment....and haven't found a good doctor yet...
Also, I have been having a bit of a bad time recently...Very tired...and aching...
But very recently, my husband ( a research biochemist) was talking to a colleague ....and he (and his daughter) have both had Chronic Fatigue for a long while...
But they both found what They called "cold shock therapy"worked very well...
this is just getting cold really quickly... and keeping it up day after day...
such as in a cold shower, or a dip in a cold sea, or river, or pool, or in any cold water...
These two people say that this cured them to a great degree..

My husband says that this would make sense scientifically, if Chronic Fatigue was caused by the Rickettsia bug...

And I find I'm better in cold weather (it's subtropical summer here now!...just ending!!)...and after a cold shower...
I would be very interested to hear if any body else agrees with this too???
:angel: :angel: :angel:

bogbeast
03-02-2004, 12:52 AM
But they both found what They called "cold shock therapy"worked very well...
this is just getting cold really quickly... and keeping it up day after day...
such as in a cold shower, or a dip in a cold sea, or river, or pool, or in any cold water...
These two people say that this cured them to a great degree..

My husband says that this would make sense scientifically, if Chronic Fatigue was caused by the Rickettsia bug...

And I find I'm better in cold weather (it's subtropical summer here now!...just ending!!)...and after a cold shower...
I would be very interested to hear if any body else agrees with this too???
:angel: :angel: :angel:


Wow, this is SO different from my experience! One of the things that makes this syndrome so interesting and challenging seems to be that there very different things that help different people, along with the large number of theories about causation!

I have found that cold ( and we've got it in Minnesota, where I lived until August) made my generally much worse--I couldn't stay warm and usually was worse in January and February, our coldest months (temps of -25 to +45 F). In the past several years, I have also become intolerant of high heat as well, especially with high humidity--totally enervating, I'd be like a limp dishrag.

I'm sure that the even, moderate climate here in the San Francisco Bay area is part of why I feel so good now, even with the stress of moving!

diamondbird
03-02-2004, 01:22 AM
Have never experienced this freezing cold, as I live in the sub tropics ( the Gold Coast which is rather like San Franscisco bay I think).... so Maybe intense cold all the time is bad too...

But is it better to be a little cooler...then warmer do you think?
I can't function in the heat...but I feel better in the colder times...but not that cold...
Is Chronic fatigue tempreture related... do you think?

:angel: :angel: :angel:

bogbeast
03-03-2004, 12:54 PM
Have never experienced this freezing cold, as I live in the sub tropics ( the Gold Coast which is rather like San Franscisco bay I think).... so Maybe intense cold all the time is bad too...

But is it better to be a little cooler...then warmer do you think?
I can't function in the heat...but I feel better in the colder times...but not that cold...
Is Chronic fatigue tempreture related... do you think?

:angel: :angel: :angel:

I don't know about the illness itself being temperature related, but my old doc (infectious diseases and CFS specialist) had one patient who did much better with heat, and moved to Florida as a result.

personally, I think that a lot of treatment is trial and error. If something makes you feel better, do it! and obviously, if it makes you worse, avoid it. I took a part-time job one summer that involved a lot of walking, thinking it would make me stronger--which it did for a while. But by the end of the summer I was exhausted and slowing down. Too much of a good thing, I guess!

I can only recommend using your own knowledge and awareness of your body. It's clear that they don't know cause or cure--it appears to be caused by a variety of factors that express in very similar symptoms, whether ricckettsia (sp), low blood pressure, whatever, personality type, etc. there seems to also be some correlation, for some, with childhood abuse--

My theory is that your body reaches a point where it can't take "it" any more, and runs down. Certainly, for me, dealing with my own abuse history, leaving a toxic relationship and bad job, have all helped, but I remain very vulnerable to any sort of stress: an hour too little sleep will cut back how far I can walk the next day, getting worked up over something can lead to another cold, a cold can go into a sinus infection that keeps me down for a month or more.

For myself, since I am generally "good" right now (though I can't do half of what a normal, healthy 50-year-old could), I need to focus on gradually gaining strength and endurance--as much to carry me through the next relapse as anything else--and improve my diet, since my sweet tooth and aversion to the kitchen don't help me any. And I'm sure losing weight would help a lot--I gained 40 pounds during that 2- year relapse, and it's not going away yet. Can you imagine how much energy I could save by not hauling that around all the time???!!?

diamondbird
03-03-2004, 06:40 PM
I don't know about the illness itself being temperature related, but my old doc (infectious diseases and CFS specialist) had one patient who did much better with heat, and moved to Florida as a result.

personally, I think that a lot of treatment is trial and error. If something makes you feel better, do it! and obviously, if it makes you worse, avoid it. I took a part-time job one summer that involved a lot of walking, thinking it would make me stronger--which it did for a while. But by the end of the summer I was exhausted and slowing down. Too much of a good thing, I guess!

I can only recommend using your own knowledge and awareness of your body. It's clear that they don't know cause or cure--it appears to be caused by a variety of factors that express in very similar symptoms, whether ricckettsia (sp), low blood pressure, whatever, personality type, etc. there seems to also be some correlation, for some, with childhood abuse--

My theory is that your body reaches a point where it can't take "it" any more, and runs down. Certainly, for me, dealing with my own abuse history, leaving a toxic relationship and bad job, have all helped, but I remain very vulnerable to any sort of stress: an hour too little sleep will cut back how far I can walk the next day, getting worked up over something can lead to another cold, a cold can go into a sinus infection that keeps me down for a month or more.

For myself, since I am generally "good" right now (though I can't do half of what a normal, healthy 50-year-old could), I need to focus on gradually gaining strength and endurance--as much to carry me through the next relapse as anything else--and improve my diet, since my sweet tooth and aversion to the kitchen don't help me any. And I'm sure losing weight would help a lot--I gained 40 pounds during that 2- year relapse, and it's not going away yet. Can you imagine how much energy I could save by not hauling that around all the time???!!?

Sorry to hear about your painful past...yes, I really think that all of that would increase anyone's susestibilty to any illness, but paticulary chronic Fatugue, I guess...
Interested to hear about the person who got better in the heat! generally the other way in my experience..
but what about that job in summer, where you walked a lot...that's exactly what I'm saying...excerise in hot weather can really bring you down, after a while! ...
it really is a complex issue...and your right!
...you should find out what suits you...and go with that...there must be many causes for this dratted thing!
I can really relate to your "good"...I'm the same, and any overwork can lead to insomnia, and increased stress...and tiredness. I find that a couple of Ibofrofen for the muscle pain, and a strong valerian tablet helps me to get to sleep at bad times...what do you use?
I also do some gentle exercise (Yoga) which seems to help as well..

There's something about chronic fatigue, that really increases the sweet tooth, I think...Perhaps it is a desperate way by the body to gain energy! I don't want to think how much I gained this way! Now desperately trying to take it off...
Hope that you are having a "good" time at the moment!

:angel: :angel: :angel: